First of all, thanks again to everyone who stopped by to offer a message of support about my laperoscopy. Your words and good wishes meant so much to me during this stressful time.
Now, for the news:
There was NO endometriosis. I know, I'm just as shocked as you are. I had every. single. symptom. A veritable repeat of what I endured before having my first lap' 9 years ago. I expected a mass of endo and adhesions on/around my left ovary, but nope. Clean as a frickin' whistle.
So, why am I in pain? They have no explanation. The current theories are either andrometriosis (aka adenomyosis) in my uterus, or IBS. I'm thinking I definitely do NOT have IBS. I don't have the symptoms, and I'm sorry, but my bowels are not making my pelvic region feel like the victim of a slasher movie every month during my menstrual cycle. If it is adenomyosis, there is no treatment, other than a hysterectomy. And, since I have yet to get any use out of my uterus, I'd like to hang on to it for now, thanks.
I cannot tell you how depressed and frustrated I am. While it is good NOT to have endo, at the same time, I hate not having a diagnosis. I'm basically being given the option of having my uterus ripped out, or spend every month for the next 10-15 years until I reach menopause in pain. Not fun. Not to mention I have no idea how this would affect IVF. Would my embryos even be able to implant? And if they did, what's the risk for miscarriage?
So, back to square one. Which is absolutely nowhere. Sorry, but I'm gonna be a Bitter Betty for awhile on this one.
Oh, Nat. I'm sorry I missed that you were having surgery. Hope you are feeling better. Sorry that there was no cause for the pain.
Hugs and hope you are feeling better soon.
Posted by: Kellie | March 05, 2009 at 10:16 AM
This is such BS. Not having an answer is one thing, but maybe a doctor could come up with a plan to FIGURE IT OUT?? I am so sorry. You should not have to make the choice between losing body parts or spending the next decade in pain. The only words of wisdom I have are to think about switching to Lybrel (not sure if there are alternatives), which is the BCP without the placebo week, so you never have a period. That's if you can tolerate BCPs. Keep pushing on your doctor, but mostly, take care of yourself.
Posted by: Donna | March 08, 2009 at 12:49 AM